Privacy Policy

This Privacy Policy tells you how Inform life AS handles and protects the privacy of personal information that you may provide us.

Summary

Inform life AS collects anonymous computer information to be able to provide our main service; www.inform.life (“the Site”). We collect personally identifiable information from you when you register as a user, and submit a contact form for trial participation. Your personally identifiable information is kept confidential and will never be disclosed unless we are required to do so by law, or because you explicitly ask us to when contacting a clinical trial through our contact form. We do not share your personal identifiable information with any other than the referred clinical trial site (hospital).

Inform Life is a service for patients and healthcare personnel which we offer completely free to use for anyone aiming to find and stay updated on available clinical trials. To do so, Inform Life creates revenue through personalized and contextualized advertising towards our users on the platform. We aim to advertise as relevant as possible, and in a fashion which does not disturb our users when looking for a clinical trial. If, however, this is in any way disturbing to you as a user, the advertisement and/ or email exchange can be switched off for each search, each trial, or completely switched off in the “personal settings” section. To us, the overarching goal is to help you find a clinical trial for your situation.

All information collected from your platform behavior may be used and shared with third parties on an anonymous and aggregated basis only. Your identifiable information is not sold nor made available to third parties. Your personally identifiable information is stored in our databases and will not leave our databases except if we refer you to a clinical trial upon your request. You can access, modify, or permanently delete your records at any time by sending a request for such information/ delation to our Data Protection Officer at dpo(at)inform.life.

Inform life AS does not exchange personally identifiable information through/via social media – nor do we sell or share your personally identifiable information with anyone.

Please note that your relationship with Meta/ Facebook, Google or any other third party website or social media is governed solely by your agreement with such third-parties.

By accessing or using this Site, you agree to this Privacy Policy. This policy may change from time to time. Your continued use of this Site aer we make changes is deemed to be acceptance of those changes, so please check the policy periodically for updates.

You can opt out of this service at any time and can choose to not use the Site.

Children Under the Age of 18

Our website is not intended for children under 18 years of age. No one under age 18 may provide any personal information to or on the Site. We do not knowingly collect personal information from children under 18. If you are under 18, do not use or provide any information on this Site or on or through any of its features, and do not provide us with any information about yourself. If we learn we have collected or received personal information from a child under 18, we will delete that information. If you believe we might have any information from or about a child under 18, please contact us at: dpo(at)inform.life

Purpose of Privacy Policy

The purpose of this Privacy Statement is to explain what Inform life AS does with personally identifiable information that you provide to us. We want you to know how your personally identifiable information will be protected, as well as under what circumstances we may share it, with whom, and for what purposes.

Reason for Collection of Your Information

Some of Inform life ASʼs services, such as browsing through our clinical trial webpage, do not require any form of registration or identification. You can freely visit our web page without telling us who you are. However, inquiring for the clinical trial, you can be required to provide your personal details. This allows us to process your request and establish contact with our nearest clinical trial site to perform screening for eligibility.

Inform life AS does not sell and will not share your personal data without your consent – and this is only within the capacity of connecting you to the clinical trial staff responsible for the requested trial.

Personal Information Collected From You

The information that we ask you to provide may include your first and last name, age, gender, ethnicity, contact details (mailing address/telephone number/email address).

Collection of Computer Information

When you visit the Site we do not collect any personally identifiable information about you without your permission. However, we do collect information about you if your computer is set to allow that type of collection. This includes Cookies, IP address and device ID. You can turn off the ability to collect some of this information from your computer or device settings.

This type of information allows us to evaluate interest in our website and perform other market research analytics. It also allows us to track visitors to our website based on website advertisements about Inform life AS services. Please see our Cookies Policy to learn more about our use of Cookies.

For information on how to opt out of third-party collection of information; please visit the ʻNetwork Advertising Initiativeʼ (NAI) website – an independent website not sponsored by, or affiliated with Inform life AS.

Consent to Provide Your Information to Inform life AS

We request your consent to collect your personally identifiable information when you seek to target notified about changes or newly listed clinical trials. By using our site and/or registering as a user, you consent to this. We offer you the option of discontinuing your consent (“opting out” or “unsubscribing”) if you later decide that you no longer want to participate in that program or receive additional information from us. Please note that if we share your personal information with a site manager of a clinical trial (“a hospital”) that hospital may continue to have access to your personal information even if you choose to no longer receive additional information from us.

Sharing Your Information With Third Parties

Inform life AS will not share your personal information with third parties except as set forth in this Privacy Policy or we have otherwise obtained your explicit consent to do so. You provide your consent when you register as a user at inform.life or use our contact form as a un-registered user at inform.life. If you are interested in a clinical trial, your personal information may be shared with partners involved in delivering the trial services. These may include clinical trial sites, laboratory screening/testing and transportation services. We cannot

completely control this information, and cannot be responsible for personal identifiable information shared with third parties involved in the clinical trial.

Demographic and medical information you provide to us may be used and/or shared with third parties in anonymous and aggregated form only.

Inform life AS requires third parties to whom it discloses personal data to protect personal information using substantially similar standards to those required by Inform life AS. We also require that they do not use your personal information for any separate use that is not specifically for the execution of the clinical trial or as otherwise authorized by Inform life AS. There may also be instances where Inform life AS may be required to share your information with third parties who have not been retained by us (directly or indirectly), as ordered or directed by courts of law or other governmental agencies.

Inform life AS may share your personal information in the following circumstances: to our affiliates, provided their use and disclosure of your personal information will be subject to this Privacy Policy; to a buyer or other successor in the event of a merger, divestiture, restructuring, reorganization, dissolution or other sale or transfer of some or all of Inform life ASʼs assets, whether as a going concern or as part of bankruptcy, liquidation or similar proceeding, in which personal information held by Inform life AS about our Site and customers is among the assets transferred.

Security of Your Information

We use appropriate technical, administrative, and physical safeguards to protect data that pertains to you from loss, misuse, or alteration. In addition, we take steps to ensure that our safeguards take into account new known threats. Of course, no organization can guarantee the absolute security of personal information. You should keep in mind that Internet transmissions, particularly email transmissions, are never 100% secure or error-free. Accordingly, we also caution you to guard your own computer and password against unauthorized access by others.

Any detected breach of data security (accidental or unlawful access, disclosure or misuse of personally identifiable information) shall be reported to dpo(at)inform.life without undue delay.

Transfer of Your Information

We do not transfer your data outside the EEA if you are a EU citizen. Our servers for our EU visitors are placed in EU member countries.

At times Inform life AS may be required to transfer and/or store personal information in countries other than the country where the information was provided. In these cases, we maintain compliance with applicable privacy laws and legal frameworks. We protect personal information entrusted to us no matter what country it is stored in or transferred to and have appropriate procedures in place to help ensure the security of your personal information.

Retention of Outbound Emails

We use Postmark to manage and deliver outbound emails. To enhance email delivery analytics and and help prevent malicious content, Postmark securely retains copies of sent emails for a period of 7 days. This temporary storage allow us to monitor email performance, ensure successful delivery, and maintain the integrity of our communication.

During this retention period, only authorized personnel within Inform Life AS have access to this data. Postmark and Inform Life employs robust security measures to protect stored information, ensuring compliance with data privacy standards. After the 7-day retention period, emails are automatically deleted from Postmark's servers.

Retention of information

Inform life AS retains your personally identifiable information until you ask us to suspend or permanently remove it.

Accountability

Our privacy practices are periodically reviewed by our auditors to verify compliance with this Privacy Statement.

Updating and Accessing Your Information

Inform life AS complies with laws and regulations applicable to the right to amend your data in our files. These rights are limited in some ways. In addition, in order to protect your data from unauthorized access or alteration by third parties, all requests to update or access your information will be subject to verification of the identity of the requesting individual. If you delete your user content from the Site, copies of your user content may remain viewable in cached and archived pages, or might have been copied or stored by other Site users. Proper access and use of information provided on the Site, including user content, is governed by our Terms of Use.

Updated Inform life AS Privacy Policies

Inform life AS may update this Statement from time to time. We encourage you to review our Privacy Statement periodically.

Your European Union Privacy Rights

This Privacy Policy is in accordance with the GDPR; General Data Protection Regulation (EU) 2016/679. To access, update or delete/withdraw your personal information; please send an email to: dpo(at)inform.life

Inform life AS may require you to provide additional information necessary to confirm your identity before we comply with any request made by you.

Cookies and tracking information

This website uses cookies. By using this website and agreeing to this policy, you consent to Inform life ASʼs use of cookies in accordance with the terms of this policy.

Cookies are files sent by web servers to web browsers, and stored by the web browsers.

The information is then sent back to the server each time the browser requests a page from the server. This enables a web server to identify and track web browsers.

There are two main kinds of cookies: session cookies and persistent cookies. Session cookies are deleted from your computer when you close your browser, whereas persistent cookies remain stored on your computer until deleted, or until they reach their expiry date.

Inform life AS uses the following cookies on this website, for the following purposes: Authentication and in-logging
User settings, such as language
Analytics, for evaluating and improving the user experience

Pixel to analyze traffic from Meta

How to Contact Us

If you have any questions about our Privacy Policy, please email us at:
Inform life ASs Data Protection Officer (DPO) may be contacted via email: dpo(at)inform.life Please allow for a maximum of 45 days to respond.